This article outlines the benefits of family member involvement at all stages of mental health research. As an integral aspect of a longitudinal study of family self-help/mutual aid organizations, family members participated as advisors, researchers, and knowledge translators. Their participation served to improve the research design, inform the research questions, enhance the quality of the data, and assist in knowledge translation.
A comprehensive evaluation framework for mental health consumer/survivor organizations: values, conceptualization, design, and action
This article provides a framework for the evaluation of mental health consumer/survivor organizations that consists of four main components: (a) participatory processes, (b) conceptualization of the activities and outcomes at the individual and systems levels of these organizations, (c) the combination of quantitative and qualitative methods for examining activities and outcomes, and (d) dissemination and action.