John Trainor

Special Issue

A comprehensive evaluation framework for mental health consumer/survivor organizations: values, conceptualization, design, and action

Authors:
Pages:
29-53

This article provides a framework for the evaluation of mental health consumer/survivor organizations that consists of four main components: (a) participatory processes, (b) conceptualization of the activities and outcomes at the individual and systems levels of these organizations, (c) the combination of quantitative and qualitative methods for examining activities and outcomes, and (d) dissemination and action. We assert that these components form a comprehensive and holistic framework for evaluating mental health consumer/survivor organizations; we illustrate how these components can be put into action through a case study of four mental health consumer/survivor organizations in Ontario; and we reflect on the lessons that we have learned in conducting this evaluation.

A benefit for everyone: family-researcher collaboration in the mental health field

Authors:
Pages:
55-70

This article outlines the benefits of family member involvement at all stages of mental health research. As an integral aspect of a longitudinal study of family self-help/mutual aid organizations, family members participated as advisors, researchers, and knowledge translators. Their participation served to improve the research design, inform the research questions, enhance the quality of the data, and assist in knowledge translation. Reciprocal benefits to the family members include increased research capacity, self-esteem and empowerment, financial remuneration, and a sense of ownership in the research. Innovative methodologies that consider families as full participants in all aspects of ongoing program evaluation research are recommended.